Wednesday, July 31, 2013

Mobility-Shmility

So in my last post I mentioned that I've had some issues with mobility.  I figured I'd go into it in some more detail today.

It started a bit over three years ago if I remember right (but keeping track of time is something I have never excelled in)  I started falling down.  At first a few times a week, and I thought, "Man I am really getting clumsy" and would laugh it off.  But then it started happening every day.  Then multiple times a day.  Then up to 12 or 13 times a day.  The weird thing was that I wouldn't get light headed, or feel weak before it happened, there would literally be no warning.  My legs would just collapse and I would fall.  I fell in the shower, I fell down stairs, I fell in the street, it didn't matter where I was.  I'm just really lucky I didn't break something or get hit by a car (bruises scrapes and bumps I had a plenty though!)  It got to the point that for my own safety they put me in a wheelchair while they tried to figure out what was going on, I became affectionately known as a "medical mystery"

They did tests,
And theorized that it could possibly be a rare strain of Epilepsy, so I started on meds and got to wear a fancy bracelet.
But I kept falling, and they couldn't explain why.  I stayed in that chair for too long, I hated it.  I told a nurse, "I don't want to feel handicap"  she replied, "But hunny, you ARE handicap!"  That was it.  THAT was the moment.

I created a new mantra for myself, "I am strong, and I CAN WALK!"  I said it over and over and over day in and day out.  I switched from a wheelchair to a walker (I was pimping granny style) and used that for a long time.  I was walking with help, but I was also still falling.  I kept up with my mantra and started working with a physical therapist.  My legs slowly started to get stronger, and I started to fall less.  Eventually I was strong enough where I could switch to a crutch (a.k.a. my "wacking stick").  I used the crutch for about a year, and continued to fall less and less.  Then one day, I stopped falling.
Soon after I retired my wacking stick.

Eventually they pulled me off of the epilepsy medication, when after much back and forth they decided I didn't actually have the disease. I continued not to fall.  The Dr's basically said, "Huh, that's weird that you fell like that for so long and have now stopped falling.  But good that you've stopped falling!  So.... yea... as long as there's nothing else, have a good life!"  And I haven't heard from them sense.  As I said, medical mystery.

But the important thing is that it's been almost 7 months sense I fell, and I'm completely off of all Epilepsy medication.  I  have full mobility, I walk several kilometers every day, Work out at a gym, I can even run now!  (short short distances, but it's something)  The only thing that holds me back now is unrelated Fibromyalgia pains.

So there it is, the rant of why I was in a wheelchair.

Yea.

Love,
Mango Kitty

No comments:

Post a Comment